SUDEP FAQs
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SUDEP stands for Sudden Unexpected Death in Epilepsy. 1 in 1,000 people diagnosed with epilepsy dies from SUDEP each year. Many people who die from SUDEP are otherwise healthy, and no other cause of death is identified in SUDEP deaths.
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Epilepsy is a neurological condition that causes seizures due to its effect on the nervous system.
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Educating yourself on epilepsy is a fantastic way to show support to the epilepsy community, as feeling understood is an uncommon thing for those with epilepsy.
Other things, such as volunteering for epilepsy non-profits and charities and promoting their social media, becoming Seizure First Aid certified, and donating are all great ways to support the epilepsy community.
Why We Need To Act Now:
• More than 65 million people worldwide have epilepsy, a neurological condition that affects the nervous system and causes seizures.
• Among those living with epilepsy, nearly one-third have ongoing seizures despite existing therapies.
• Each year, more than 1 out of 1,000 people with epilepsy die from sudden unexpected death in epilepsy (SUDEP).
• If seizures are uncontrolled, the risk of SUDEP increases to more than 1 out of 150.
• SUDEP is the leading cause of death in young adults with uncontrolled seizures. More information: https://www.epilepsy.com/learn/early-death-and-sudep/sudep
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